WASHAA, PracticeUP and NAHAC are the best ones to follow, as they offer individual credit opportunities routinely. Some of the others are primarily conference-based, which can be very cost prohibitive to attend, particularly when you’re already attending other medical (non BCPA credit) conferences throughout the year, and others are part of much…[Read more]

Lea Ann Biafora, MS, RN, OCN, CCM os a Patient Advocate specializing in cancer care. She works in Florida and Massecuches. Here is a link to her website. https://beaconadvocates.com. Feel free to reach out to her. She is looking for experienced advocates. She just released this video. Check it out…[Read more]

Elizabeth and anyone else who reads this post….there are hundreds of opportunities for learning and to gain your credits to renew your BCPA. As a Nurse, Case Manager and Certified Registered Rehab Nurse, I need to have 80 credits in 5 years. As I go to many conferences this is not a difficult task. If you see a program that meets your…[Read more]

Although my practice is not specific to cancer. I personally helped my brother navigate through cancer. As a result, I was asked to be a part of the UF Cancer Center Patient and Family Advisory Committee and Orlando Health Corporate Committee in Orlando, FL where he was going through treatments.

Tammy Krack
BlessedAdvocacy.com

Elizabeth – as part of the first cohort, you are right that there were not a lot of CE options early on.

However, as of now (early in 2020) – there are 16 organizations listed on the PACBoard website that offer pre-approved CEs, and most offer many options for them (including APHA and PracticeUP! Online). https://www.pacboard.org/ce-by-provider/…[Read more]

I’ve made the choice. I was certified in the first coterie, in 2018. Now I am concerned about the requirements to stay certified – will there be enough opportunities to obtain the required CEUs in only one more year. That coupled with the realities of starting a new line of work make me wonder about the value of staying certified. Yes, I am…[Read more]

Hello! My name is Asia Olson and I am just getting started as a Patient Advocate in south Texas. My hope is to advocate for individuals and families affected by mental health and substance use disorders my navigating today’s complex healthcare system on their behalf. Are there any other advocates here who specialize in this population? If so, I w…[Read more]

Hello ,
My practice is cancer specific. I have 25 years experience with bio pharma at Genentech and personal experience navigating both of my parents’ through cancer. I feel it is a calling for me to be in this space and I’ve had my practice for 2 years. http://Www.cancer-champions.com

Al of the above are great suggestions… It’s a very challenging road… Also, more information from the Alzheimer’s Association can be helpful… They have a 24/7 helpline for support and helpful counseling for caregivers dealing with a loved one with Alzheimer’s Disease… Their phone number is 800-272-3900…

Anne,
I have had clients receive chemo in both settings you mentioned. It sounds like you are doing a great job of investigating the costs associated with each option, and prior posts mention some of the queries needed re: staff training. Understanding the volume of patients infused in the doctors office, if the office is part of a larger system…[Read more]

By the way, after I asked for her phone number, she never responded. Se la ve!

I’ve been advocating for Mesothelioma for the last14 years, pretty much since my diagnosis.
I got heavily involved in 2012, when I started blogging and doing more awareness around the disease.
I’ve been doing a lot on the national level as well as one on one advocacy.
I’d be happy to connect!

My practice is not limited to cancer, but it is the area in which we have the most experience. I have extensive experience with MSKCC, DF and UCSF and have had success obtaining personalized treatment for my clients.

AnnMarie McIlwain
PatientAdvocators.com