Hi Gail,
He denies EDS states his testing was completed by a geneticist and does not want that topic brought up. He hasn’t completed all the testing recommended for MALS yet. We are meeting with a neurophysiologist to advocate for a Electromyography (EMG) and nerve conduction study-He will have other appointments also -he is seeking muscle repair and getting a diagnosis on his chart although he has not set up the recommended testing to rule in MALS.
Thank you