OMG – I had no idea there were so many responses. It’s wonderful! (I thought I would get an email notification when there were responses, but I must have been dreaming!) Thank you to everyone who replied, as well as for the information you provided.
I’ve had some exposure to rare diseases over my years in academia, but no first hand experience. I’m looking to learn and collaborate with anyone interested.
Would you like a monthly Zoom meeting (or more often) to discuss our mutual and disparate areas of focus, expertise/experiences, and best practices? I’d be happy to put that group together.
I’ve asked Christie to let me into the gmail group. That may be the best forum for connecting, or we can use this APHA forum. Suggestions? Comments?