Reply To: Rare Diseases and Unusual Conditions

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#369550
Christie Cox
Participant

I’m so glad to see other rare disease advocates on here. I too am a EDS patient turned advocate. Any interest in a shared email Google group to stay connected and share resources? I’m happy to set it up if people are interested. If you are – send me your email to christiehartcox@gmail.com.

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APHA - The Alliance of Professional Health Advocates
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