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APHA Expert and SIG Call-ins:
Schedule of Upcoming Calls

Teleconferences with Guest Experts or Special Interest Groups
on Topics of Interest to Patient Advocates and Care Professionals

 

No calls scheduled in May. Our coordinator will be traveling.

This is a great time to think of topics you'd like us to cover!  Please submit them in the Suggestion Box.

 

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Best Practices for Preparing Your Client for a Hospital Visit

> Connect! with Anne - Reservations are limited.

Tuesday, June 6
  4 to 4:45 pm eastern | 3 to 3:45 am central
  2 to 2:45 am mountain | 1 to 1:45 am pacific
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Sooner or later, many clients need hospitalization. Difficult tests, surgeries, infections – no matter what the reason, they and their caregivers or loved ones are at least nervous, maybe frightened, certainly anxious or apprehensive, and probably unprepared for what hospitalization means in 2017.

Hospitals today just aren’t what they used to be. Your clients may be totally unprepared for what hospitalization means in 2017. They won’t realize that they have to work themselves to prevent infection, or that their own doctor won’t be there to check in on them. They don’t understand the roles of hospitalists, or why they are being discharged far earlier than they expected (and may not be prepared for.)  They don’t realize that it’s good practice to have an advocate (family member, caregiver, or professional) with them 24/7.  And discharge – that’s its own set of confusions even when its well-received.

Join Anne Llewellyn and others in this discussion of best practices as they relate to supporting clients’ hospital visits. Bring your own ideas and questions to the conversation as this will be an “open mike” discussion for you to share among attendees.

Please Note:  Attendance on these calls is limited - first-come, first served!  Register early!

Learn more about the Connect! with Anne sessions. (You'll need to log-in to APHA Connect!)

  • Registration for this call will begin in mid-May.


 

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Diagnosis, Misdiagnosis, Lack of Diagnosis – The Quality of Your Clients’ Care and Life Depends on Getting it Right

> APHA Expert Call-in - All members are invited!

Monday, June 12 (Rescheduled from March)
7 PM eastern / 6 PM central / 5 PM mountain / 4 PM pacific

One in 20 people in America, or 12 million people each year, will receive a late, delayed or incorrect diagnosis according to peer-reviewed research published in BMJ  in 2015*. If you do the math, it means that each of us will receive a misdiagnosis at least once throughout our lifetime.

The problem, of course, is that with a wrong diagnosis, or no diagnosis at all, patients cannot receive the correct, necessary treatment. The same research showed that half of these cases, or approximately 6 million people, suffer harm from such an error, either from the wrong treatment, or lack of the right therapy all together that many times leads to permanent damage or death.
 
How can you tell if your clients have been properly diagnosed? And if there is doubt, or a diagnosis is lacking, even if you are quite sure the diagnosis is incorrect, how can you right that ship to be sure your clients are getting the care they need?
 
Io Dolka, MS, Chief Care Advocate of Greyzone knows this conundrum well. Io spent decades pursuing the right diagnosis for herself so she could get the right treatment.  Based on her own experiences, she has now built her advocacy to help others pursue the right answers for themselves.
 
Io will walk us through the questions and processes you can use to assure your clients are getting the answers they need. She’ll also tell us about Greyzone and the services it provides to patients – and advocates – alike.

> *Ref: http://qualitysafety.bmj.com/content/early/2014/04/04/bmjqs-2013-002627.abstract

  • Registration will begin in mid-May.


 

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Managing Client Expectations

> Connect! with Anne - Reservations are limited.

Tuesday, July 11
1 to 1:45 pm eastern | 12 to 12:45 am central
11 to 11:45 am mountain | 10 to 10:45 am pacific
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When someone suffers troubling symptoms, is diagnosed with something frightening, or is facing difficult treatment or even end-of-life, we sometimes find wishful thinking comes into play. When they reach out for an advocate and carry on the conversation about possibilities, they might not hear the words being spoken. Rather, they hear what they want to hear. Denial is not just a river in Egypt!

While those are extreme examples, managing expectations, can be very difficult.  Further, if wrong assumptions or understandings on their parts are left uncorrected, it can lead not just to a worse outcome for them, but legal trouble for you too.  

Connect with Anne Llewellyn and others for this call. Share your own stories of times clients didn’t understand you well, or situations you are worried you may encounter someday. Discuss possible ways to handle expectations management to ensure your clients understand what they can expect and how you can support their understanding.

Please Note:  Attendance on these calls is limited - first-come, first served!  Register early!

Learn more about the Connect! with Anne sessions. (You'll need to log-in to APHA Connect!)

  • Registration for this call will begin in mid-June.


 

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Amen! How Religion and Spirituality Can Support Your Advocacy Practice

> APHA Expert Call-in - All members are invited!

Wednesday, July 12
7 PM eastern / 6 PM central / 5 PM mountain / 4 PM pacific

Many advocates feel called to their work, either because of a personal experience, or because they believe that doing good for others is just part of who they are.  That speaks to our own religion or spirituality and why we do the work we do.
 
But just as important is the religious and spiritual orientation of our clients and potential clients, no matter what that faith-base might be.  Connecting with them through churches, synagogues, or mosques is a great way to expand your ability to help others, while expanding your practice, too.
 
Yes – we’re talking about marketing – finding new clients through houses of worship. They might come through referrals, or you may have an opportunity to speak to a church or synagogue group, or sometimes just word of mouth will work well.  An interesting twist is how payment for your services might be made.  Religion-based meeting places which are focused on doing good, and providing love and support, may have resources you aren’t familiar with that can help you help more people, and get paid for it, too.
 
Teri Dreher, NShore Advocates, and member of APHA, has begun to tap into this market with some big successes. It not only feeds her soul, but supports her belief system, and her practice bottom line, too.  She’ll be our guest for this call, helping us understand how she connects with, then supports, the people of faith through the churches she has worked with.

  • Registration will begin in mid-June.


 

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