-
Leslie Crandall replied to the topic Caregiver support for Sensory Ganglionopathy patients in the forum General Conversation 3 years ago
Another resource could be MS support groups, GBS ( Guillian Barre Syndrome), or myelitis support groups. These disease trajectories may share more similarities with your client’s and the caregivers be more relatable to her mother.
Rare diseases are such a challenge. Best wishes! -
Leslie Crandall's profile was updated 4 years ago