Hi all, I have a few rare diseases….Chiari Malformation, Syringomyelia & Pseudocholinesterase deficiency. I am currently at a Chiari/Syringomyelia conference and am thrilled that I will be invited to sit on their board 🙂
If you would like me to provide any input, I would love to. I am a success story and find people need to hear that’s there is hope. I hope to advocate for those with these conditions within my business as well.
